Showing posts with label after. Show all posts
Showing posts with label after. Show all posts

A little thing called Easter

Did you know that I really like Easter? You probably didn't because I've never really said that out loud. Untitled I'm coming out of the closet... I like Easter! Like, really like it. It's all bright and springy. This year even the weather got the "be awesome!" memo. Untitled Kate is at the perfect age for Easter fun. There were far fewer broken eggs this time. Untitled Speaking of dyed eggs... We colored these with kool-aid! They came out awesome and didn't stink up the house. Untitled *this is Minnie, she belongs to my parents * Untitled My dad is a nut. He felt the need to "re-use" the kool-aid and made himself a drink. He obviously wasn't paying attention when we mixed one entire packet of kool-aid with 2/3cups water to dye the eggs in. For those of you a bit rusty in your kool-aid making, it's one packet of water a cup of sugar and a pitcher of water. Sigh... Only my dad! Untitled Minnie still loves him. Untitled Kate worked so hard on her eggs. Sitting and sounding out everyone's names and making each family member their own egg. Untitled That night while we were talking to Daddy before bed, she apologized to him for forgetting to make him an egg. I assured her that Daddy didn't mind. Untitled I love that she still thinks to incorporate him into her daily life. I wonder at which point she'll have fewer memories with him then without him. Where did her mind start making lasting conscious memories? Was it when she was two? Has she already formed more without him then with him? Will she forget all the memories she has now? Hell, I can't remember what I went into the kitchen for 10 minutes ago. What does she remember and for how long? Untitled Back to Easter.... Untitled We tried a new place for brunch this year. My only criteria for the restaurant was that they had an Easter bunny. Kate just loves the bunny! Untitled We got the bunny and we got a real treat for brunch. I loved the food and it was a nice, relaxed environment. I don't know about the rest of the family but I want to go back next year. Untitled Throughly stuffed, we headed home for Kate's Easter egg hunt and basket opening. I can't decide if Kate would want some consigns to join her in the egg hunting fun or if she would hate sharing. Untitled A quiet afternoon of couch lounging, sports watching and Lego building. Untitled I can think of a lot worse ways to spend the day.... Untitled A few people have asked if I'm going to keep blogging. The truth is I never really quit writing I just quit posting. I needed to find my voice again. I needed to feel confident in how I was moving forward so when the inevitable Internet idiot would email me garbage about all the things I was doing wrong I could easily tell them to "shove it". I needed to find my stride, my mojo, my identity. Untitled This place needs work. It no longer feels like me. I'll be fixing that. This place is my way to show Kate (and myself) just how far we've come. Were still building, life is nothing if not a work in progress but it's a progress worth sharing, even if it is just for me. Untitled

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2,663

Standing in the kitchen this morning I'm getting Kate's breakfast ready, boiling the eggs for this aftrnoons egg dying and flipping through yesterdays mail. (I'm a super multi-tasker.)
I'm scanning the Hospice of Pallative Care of Northeastern Illinois newsletter. There are always interesting tidbits of helpful information and it never ceases to amaze me the amount of services they provide to people at the end stages of life. I catch myself thinking about all the ways that Hospice helped us that last week and all the ways they have cared for Kate and I in the almost 13 months since Scotts death.
Opening the annual report I see a number that catches my breath.
Untitled
2,663
That's the number of people that Hospice helped in 2011. There were 2,662 other people that were blessed with the loving care of Hospice's services.
And there was Scott. My Scott. My life. My baby girl. Me.

For those that knew him best, Scott was anything but a statistic. He was (and continues to be) our Scott.

Untitled
This is the only picture I have of Scott on my iPad. But I wanted to include it for two reason.
1) we were being supported by Hospice when it was taken and
2) even 2 days before his death, in obvious pain, he was Scott. Silly, goofy, endearing, loving, kind...


Thank you Hospice. Next time I feel personally connected to your annual report I hope it's because I've won the lottery and have shared handsomely with you.

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Just Can't Get Enough


My Aunt Marie is here visiting. When she asked to go to Daddy Lake, I jumped at the chance. After all, I just can't get enough.
How could it be possible to get enough of a place that makes the world seem like a better place? A place that takes my worries and pushes them aside. A place that brings me nothing but happy memories. Load up the bus I'm in! And this time, I'm bringing the whole damn family!

Its been a non-typical week around these parts. It's not often that I get sick but when I do... Look out! My body is a fan of the 'go big or go home' motto apparently. A cold turned into laryngitis, turned into bronchitis and in triumphant fashion at 2am Friday, a ruptured ear drum! Kate and I still managed a week of classes, school, work but without our usual flair.

I needed to feel the healing love of the lake. And boy did it deliver! Another absolutely glorious day! I keep pinching myself, afraid it's just a dream. I wasn't the only person feeling the love (or the pinching probably).

This was the first time the extended family gathered at the lake. The first time I've really had to share the space. I was afraid that I was going to be too busy, too distracted, too...whatever, to enjoy it. I'm so glad that wasn't the case.

I find that there are things that I don't like sharing. Pieces of him that I just want to keep all to myself. Even a year later. I'm always happy to talk about Scott, share one of his jokes or tell a story but there are just a few things, places, details, that I want to keep hidden. Tucked away from other people's opinions or thoughts. Safe from contact with any others. Kate is the only exception. And maybe that's because I know she can't change the story or add something to it.

I think that's part of the reason I stopped posting for awhile. I just didn't want to share anymore. Does this make me strange? And no, that's not a trick question like "does this make my butt look big?".

Here's the thing about being 'strange' in how I move forward with this life, I don't care if I am. I don't care if the entire world thinks I'm a flag flying freak. I am what I am and that's the end of it. I can't change it so I must embrace it.

If there is one thing I hope I can instill in Kate it's that. When there is a pure, genuine feeling in your heart, all you can do is accept it for what it is. Let your freak flag fly.

Thank you Aunt Marie for wanting to go. And thank you to the rest of the family for going. Sharing feels good. I just wish the rest of me felt that good.




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Part 2

Kate started ice skating lessons last week. Today was her second time on the ice. She's a natural. Her smile radiates off her face when she's on the ice. Grinning from ear to ear she just keeps getting back up and trying again. Just like her Dad.

I imagine what their conversations would be like right now if he was here. I know she's disappointed to come home to the empty house and not have anyone else to share her good news with. I sense the pause in her when we enter through the garage and she yells "were home" adding "Jake and Becky". Like she doesn't still want to yell "were home Daddy".

His room is her playroom now. Neither one of us like to play in there. The indentations in the floor from his bed still a reminder of what isn't here. We'll sit in there sometimes, lounging on the floor, and talk about him. Telling stories. Sharing.
She's asked to hear the story of his death more in the last month than she has in the last 11months. She wants to know every detail. When she's sure she's heard it all she asks to hear the story of her birth, or of Scott and I's first date or of the Cub's game. Absorbing as many of those details as she can before finally moving on to other important things. Like, would Ariel really marry Prince Eric?

Today she skated and we went to Daddy Lake. We ran, we chased, we played and we sat. We sat on that pier and we talked. She told daddy all about skating. She told him about starting kindergarten in the fall and about her friend Azier at school. "he's a boy Daddy. But don't worry he's not my boyfriend. I don't want one of those until after college."
This is all stuff we tell him every night and before every afternoon rest. But being on that lake with the glorious sun shinning on us, I'm pretty sure both of us knew for certain that he was sitting on that pier with us. How else can you explain 80degree weather on March 15th in Chicago?
It felt so good to be so close to him. So close and yet so far.

She is so much his girl. Quick with a joke. Always wanting to make others smile. His long eyelashes and small mouth. But it's her calm that is most like him. Her gentle ease. Sitting on that pier, a tear ran under my sunglasses. She just leaned her little body on mine and whispered "he still loves us." A true grace that can never be defined but that can only be experienced to fully understand. If you knew him, you know the grace I speak of. How did I get so lucky to have it in my life twice?

Our dinner at his favorite restaurant didn't go as well as our trip to Daddy Lake. No warnings, no signs, no information. Just locked doors. Not ones to give up, we made it work at the Olive Garden. It doesn't really matter where we are after all, it just matters that we're together. In thinking about it now, the Olive Garden is really a pretty good place. His last birthday with us was spent there. One of my favorite pictures of he and Kate, the one that sits beside my bed, was taken there. Looking at my big girl sitting across from me tonight at dinner and trying to connect her with the six month old baby in the picture on my dresser... an impossible task. Realizing that her daddy is holding on to her now just as he was in that picture; so very easy.

Every date on the calendar has now been lived since he left. Every major holiday has been conquered. We got through the past year. I'm sure we didn't do everything "right". I know it wasn't always pretty. I know there is more longing, pain, heartache to come. Beyond that though, I know we can do this. I may not always want to. But we can and we will.

This is our one wild and precious life.

and we're going to live it.

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A year part 1

My first thoughts this morning as I opened my eyes to see 321 on the clock, "normal, I feel normal". As the eyes opened so did reality. The crushing pressure in my chest; my constant companion this past week and the blinding searing pain that radiates over my eyes were back. How can I do this? How can I manage this day?
Toss and turn. Toss and turn. Mind swirling, empty thoughts, fragments of thoughts really swirling in my head. The same thoughts that have lingered all week.
He wouldn't recognize his daughter now. She's so big. Her face has changed. Her speech is clearer. Her thoughts more structured and concise. She too carries the sadness behind her eyes. A sadness that didn't exist a year ago.
She remembers him so well. Things I didn't think were possible for her to remember she holds with such clarity. She draws him as an angel. But talks to him and about him like he's here. Until it's time to make a wish or talk about what she wants to do when she's older. Then it's the same thing every time. "I wish my daddy could come back home. When I get big enough I'm going to invent a time machine to bring Daddy home.". Ugh.

I'm not where I thought I would be by now. This isn't what I pictured. I had a plan.


Toss,turn,toss,turn mumble,dream,breathe...


Get up. The alarm is screaming that it's time to workout. Another 90 minutes of sweat to chase it all away. I've got muscles I never knew I had. Even then, when I would literally carry my husband I wasn't as strong as I am today. Carrying him made me feel strong, powerful, like I had a purpose. Now... I can sweat.
Today's 90 turned to 27. I can't do it. I just can't. My breathing is wrong. My focus, my drive... Gone. As I lay on the floor all I can think is write. Write! Write to him, write to her, write to yourself. Just write. So here I am. Writing. Breathing. Listening.

I don't remember the birds chirping outside my window last year. But I wasn't in my room. What do I remember? The struggled, labored managed breaths. The eyes that lit up every time Kates voice could be heard. The scratchy, raspy, barely audible, voice that said "don't leave me, I can't be without you. I don't want to be alone."

This is my journey. This is my path. I get to choose how to spend this day. I will not spend anymore time remembering the alone, the sad, the loss. I will take our girl and I will remember the good. We'll do something new, visit you at the lake and eat your favorite dinner.

I will put away the memories of my sighs, eye rolls and complaining. I will tell her again the story of us. I will share the funny times. That is where the life is. That is what matters.

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Sweet Dreams

I don't know how it started. And even though it's 3am and it just happened I feel the details fading.
I had the most wonderful dream.

Scott and I were standing in my parents old town house. We were standing in the hallway at the top of the basement stairs. Right next to the mirrored closet door, in the exact spot where I emerged from my bedroom in my parents basement for our first date.
He seemed shorter somehow. Almost like he couldn't quite stand to his full stature. Like an older, more worn man. Certainly not the tall, energetic young man I climbed those stairs for that first date.
He may have looked different, feeble almost, but he wasn't different. His hand was cooler than mine, like always. His smile resonated off his face and standing in his presence offered me such a quiet peace.
I don't know what we were doing standing there. Kate's cry comes out from the upstairs. He immediately begins to climb the stairs "I'll get Bug" he says. As I watch him struggle to the stairs, Kate's cries become more urgent. I quickly slip past him and run up the stairs. Passing him as he says "Good idea, go get our girl."
The top of the stairs and an immediate left, I look into the bedroom that long, long ago was mine (before the move to the basement) and see Kate laying on the bed that was my brother Mathew's when he took the room after my "big" move downstairs. The four poster bed that actually belong to my grandmother. The bed that was in Scott and I's first master bedroom, in that tiny first house. A bed, that now, in this much to large house, my parents sleep in when they spend the night.
There was a smaller Kate. Not tiny like a baby but certainly not as old as she is now. Maybe, the age she was when he left us.
She called out for me again. Going over to her I climbed in bed with her. That's not something we do. Kate and I have shared a bed exactly, 1 time, and that was the night he died. Without hesitation, like it was the most normal thing to do, I pulled back the covers and cuddled my girl.
At the foot of the bed, Scott climbed in and crawled over us. Sneaking under the covers he wrapped his arms around both of us. He said "I love my girls". The last words he spoke on this earth, and pulled us in tighter.
I couldn't soak up enough. Even in my dream, I knew how lucky I was to be there. How lucky I was to be "the chosen one" the one who he loved the most.
Looking past me, he points to something on the floor and says "Look at that monster! It's older than my dad's". An older CPU is sitting on the floor beside the bed. I turn to look at it. Turning back around, to talk to him, my breath catches. He's gone. My baby girl is asleep in my arms, were still in that old trusty, loved bed, in the house where I grew up but he's gone.
I don't feel sad really. I feel comforted. Stronger. Safer

The real monitor, in my real house, in this thing I call real life, carries Kate's voice to me "Mama... Mommy?" Hesitating, not wanting to let go of my dream. Not wanting to be without him again, I hear his voice "go get our girl."

As much as I wish I could have stayed in that dream forever, I'm glad Kate woke up. I might have forgotten this dream, had she not. Maybe I've had many dreams just like this one. Odly comforting.
Maybe writing it down, I'll be able to remember the feel of the comforter as he wrapped his arms around us. Or the coolness to his skinny hand. Maybe Kate will read this one day and know that he is always with us... if only in our dreams.

Sweet Dreams...

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In The Middle

On Saturday, in the pouring rain, Kate and I (along with Mom, Dad, Justin and Kara) headed out to cut down our Christmas tree.

Scott and I loved cutting down our tree. The last few years though, it was just too hard on Scott. It was one of the few things we couldn't make happen. So we started the tradition of supporting a local nursery.
This year, I decided I wanted to reinstate the tree cutting tradition. I made the unfortunate mistake of getting a vision in my head. A vision I couldn't possibly fulfill.
But everyone put on their happy faces, except Kate who barely kept it together (in fairness to her, she was sick). We trudged out and found the least pathetic trees we could and cut them down. Soaking wet, frozen to the core and maybe a little disappointed we came home.

It's a tiny, sad, little tree that looks hysterical in my huge ass great room. It doesn't matter though. Kate and I picked it out together, put it up together and tonight, we decorated it together.

So many stories, moments and memories. Each ornament comes with its own piece of history. Not having Scott there to remember the stories, to share with, to sit with and watch the tree glow with... there are no words.

The last thing we did tonight was hang the stockings. I didn't know what I wanted. Hang Scott's stocking. Leave an empty space. Fuck stockings...
My mind swirled with thoughts. I just didn't know the right thing to do. So, I asked Kate what she wanted. That little girl never ceases to amaze me. Without hesitation she said she wanted it up.
"It would make him happy."
"But, Kate would it make you happy?"
"Yes, because he's always watching me and he believes in me."
"Yes, he does Baby."
"Can Daddy stocking go in the middle?"
"Of course it can."



What would I do with out her?

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We give thanks

He's been on my mind, and in my heart all day. All the preparing, cooking, baking, talking, laughing, listening, and eating, never a moment was he far away.
The crowd has left. Our beautiful daughter sleeps. I've wrapped myself in his favorite sweatshirt, wearing his ring.
He is with me... and I am thankful.


I can't possibly begin to list all the things I'm thankful for. I hope you spent your day feeling thankful as well.

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Fake it Until you can make it.

In his eyes, I could do no wrong.
With him gone, I feel like I can do no right.


I start to feel human. Wham... our anniversary.
Pick up for a few days. Slap... 8months since his passing on a Tuesday that went down in history for being awful.
Dust myself off. Karate chop...thanksgiving.

Gee, I'm excited to get through my birthday next week and then the mother of all moments... Christmas.


If you see me in public, you wouldn't know what I'm feeling. For the most part, I can get through my day. I come here, to this place, to let go of the ugly, hurt, sad, broken parts of my soul. I'm so thankful that I have this place.

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Missing

I miss him everyday. Everyday, I think 1,000+ times "I wish"...
When Kate masters a new skill. Or when she's flipping out in swim class and I'm left struggling with what to do next. Becky the cat, snuggled on my feet. Jake the cat, doing somersaults. Yummy treats. The first crisp fall day.
When folding socks and I find the last sock he wore. When I hear Kate tell random strangers that her daddy is in heaven.
The list could go on forever. But those moments roll past. What used to make me stop in my tracks doesn't even slow me down now. I feel the "missing" but it doesn't stop me. I keep moving. Breathe in, breathe out.

But tonight, today... I'm stuck. I'm stuck and I can't see past my longing. There is no physical piece of him left. His jacket doesn't carry his smell. His pillow has lost it's dent.
Kate and I have been to grief counseling. While I was assured (repeatedly) that Kate is doing remarkably well, the counselor encouraged me to keep Kate talking. We've been working on "feeling" words. Talking through our feelings and not getting angry, frustrated or reduced to tears. Today for the first time, Kate climbed into my arms in the middle of the day and cried for her daddy. She begged for answers and told me that nobody else will every play Playdoh like Daddy did. She cried big shirt soaking, cheek staining, tears. And I couldn't do anything but hold her.
I will hold her forever. Never letting her feel alone. I can't replace her father but I can be the best mother for her. Being stuck is not an option. Working past "stuck" is something I do well. I certainly did it better when he was here.

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Goodbye Andy. Say hello to Scott

You're probably thinking "She's officially lost her marbles." You may be correct but I do have a reason for my slightly bizarre title.
In case you have heard Andy Rooney has died. When I heard the news this morning, I couldn't help but laugh. Literally. I'm not the type to laugh at any ones death, and certainly not at an American icons death. But this morning, I knew that Scott was getting one of his wishes.
Scott had an interesting "relationship" with Andy Rooney. One of my favorite stories that Scott shared with me was about his Sunday nights growing up as a kid. In the Witt house, Sunday night brought family dinner, and a quiet night of television.
Scott knew when he heard the ticking of the 60 Minutes clock on the television, his weekend was over. The hours of playing outdoors were gone. The time spent on the shore of a local lake with Rob, catching fish was over. The bikes were put away. The garage door was closed.
He had to trade in his Star Wars figurines for pencils. It was time to finish homework and sit with the family and watch 60 Minutes and the Disney Sunday Night Movie.
Scott hated knowing the weekend was over. He wanted nothing more than to stop that silly clock on the tv and keep having the non-stop fun. As we all know, all good things must come to an end. Scott just hated letting go.
As he grew older, Scott started listening to Andy Rooney at the end of 60 Minutes. Loving the way Mr. Rooney could analyze the simplest of things, making you see them differently. Scott would listen to Mr. Rooney and laugh. Scott would think about what he was hearing and admitted to thinking to himself on more than one occasion "What would Andy say about this?".
Those final moments of 60 Minutes stuck with Scott long after he stopped watching it. Andy Rooney stayed on a short list of people that Scott thought were pretty cool and would like to have lunch with.
I know that Scott got his wish. I'm not sure how the whole "lunch" thing works in heaven. But I'm really very sure that Scott is breaking bread with Andy Rooney. I'm kind of jealous of Andy.

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Solitude


Sometimes the body, mind and soul need nothing but solitude. That's what I gave myself yesterday.

I want to thank everyone for the email, texts, messages and phone calls yesterday. To have so many people thinking of me (and Scott) on what would have been our 8th wedding anniversary means more than I can express.
I got through yesterday and I'll find a way to get through the holidays that lay ahead.
Lots of positive changes coming. Changes that I've been resisting. In fact, a little bit of that needs tending to now.

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Hiatus Update 2.0

I've been working hard. Working hard to come back here to this little space on the internet that I call home. I'm not working hard for anyone other than myself. I miss writing. I miss the calm I feel after putting my thoughts to "paper". It clears my head and offers perspective. It gives me a chance to mark this time in history for Kate.
I started feeling like my writing was taking on too much of a "poor me" feel. I felt like I was getting stuck. I had to step away. Take some time, figure out what I wanted. Make sure, I kept writing from my heart.

I've got a stock pile of things that I want to share. Lots of great photos. Some fabulous Kate escapades.
But right now, I'm just trying to get through the next few days. Eight years ago tonight, Scott and I were having our wedding rehearsal. Gathering most of our wedding party and family and preparing to walk down the aisle, two days later.
Scott and I always took time out of today to remember those moments before the wedding. Always, even last year. Seems like we told the same stories every year. But they were our stories. Stories that I want to hear again this year but can't bring myself to share.
As Kate pointed out today while we were carving pumpkins, "This was more fun last year when Daddy helped."
So for now... deep breath in, deep breath out.
Kate's school party and trick or treating tomorrow. Then Tuesday... eight years. I'll find some way to memorialize it. I'm just now sure how.

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Used to Be

Seems like a few weeks ago the "good days" were more frequent. I'm struggling to find a way to get through the next few months. I know I need to start "talking". I know I need to feel like I'm being heard. I just don't know where to start or what to say.
Listing all the things I miss about him over and over again, just seems to fall flat.


Found this picture on the netbook today. I found myself being reminded to "fake it until you can make it".
Maybe, I'll try that tomorrow....

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Tuesdays Gone

This song is never far from my mind on Tuesday. It caught my attention a few months ago and I'll randomly catch myself humming it as my Tuesday starts.



You would think that Tuesdays would just be Tuesdays by now. You wouldn't think they would still be "Tuesdays". They have gotten better. I don't get stuck every Tuesday afternoon. I don't dread it, count the moments or beg for the day to pass. I've stopped counting days and weeks. Good things can happen on Tuesdays now.

I'll count that as forward progress.

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My Sister In Law

I haven't talked much about Tamara here. Truth is, I never met Tamara and until just recently I didn't really even know her.

My basement flooded a few weeks back. Coating the entire floor in about 2'' of water. I filled a 10yard dumpster with the really ruined and sent my reinforcements home. Leaving the rest for me to sort through.

When we moved into this house six years ago we did it rather quickly and with lots of distractions. Moving Scott's father out of the "Witt family house" where Scott grew up and the Witt family grew, loved, and grieved for 30 years and in with us in this house was an undertaking for sure. Loads of boxes were crammed with stuff and piled in the basement to be dealt with "later". That later came with this flood.

I have now gone through every box, Rubbermaid container, Matchbox car holder, and tackle box. I've sorted, purged, cried, laughed, longed and ached. I've read cards from Scott's mother to his father. Book reports that Scott wrote in the sixth grade. Letters from Scott's mother to his sister while she was away (either in the hospital or away at college). Endless amounts of medical transcripts have crossed in front of my face.
But, the best things that these eyes have seen (besides the photos of Scott doing all kinds of things through out his life) were the beautiful words of my sister-in-law Tamara.
Tamara, was a published author and poet. A National Honor Society Member. A straight A Bradley graduate that over came all the obstacles that life put in front of her. Her mind, her heart and her soul never left her even when her body betrayed her and made writing almost impossible. She found ways. She and her brother, they found a way to be heard.
From birth until death, they spoke loudly with whispers.

So many of Tamara's writings spoke to me. Tamara wrote this poem in the late 90's. Long before Scott was diagnosed with Ehlers-Danlos IV (but a while after her diagnose of EDS IV). Tamara wrote words that would say exactly what I would be feeling almost 20 years later.
I'm thankful for the flood. It gave me my sister-in-law.

The Sun Will Rise
an original poem by Tamara Witt (copyright implied)

Dark, oh, dark is night
When you have known the light.
Feeling so alone
For you've held someone.
Hungry, not for food.
Tending just to brood.
Practicing a smile,
Just once in a while.
Keeping friends away,
Hiding what frowns say.
But you do forget,
Though your sun has set,
Other that can see
Through you easily.
Open your streaming eyes.
Watch. The sun will rise,
Warming the cold space
From one none replace.
This, too, I did see
Though no one showed me.



I'm working my way back from my hiatus and I'm letting Tamara help guide me.

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Snipits

It's my brother Matt's 35th birthday. He's really old and stuff.
Kate picked out his card and gift all by herself. She's gotten much better at picking out presents. She chose a blue balloon with music notes and Happy Birthday written on it. Blue because "it's his favorite color". Music notes because "he plays music on his guitar" and Happy Birthday because, well... it's his birthday.
Along with the perfectly chosen balloon was a pretty fab green t-shirt that she told him all about the second she saw him. It's not the "bestest guitar in the world" that she wanted to get him but it fit into the budget.

I made bananas fosters for dessert. Turned out more like bananas soaked in lots of rum. Tasty!

The wind is whipping. It's been raining for days. I found out today that at some point in this rain, my almost 2,000sq ft basement flooded. Went down to a musty smell and wet concrete. No standing water any longer. I haven't yet begun the challenge of clean up. That will come tomorrow with the dumpster.
It can stop raining now.

I have such great friends. Offers of help, loaning of fans, access to commercial grade disinfectants and some pretty funny emails and texts to help me laugh instead of cry.

My dad found a record (a real honest to goodness record) that was a recording of my great grandma Mabel playing piano and her and my great grandfather Frank speaking to my Grandma Donna. I never met Grandpa Frank and I never got to hear Grandma Mabel play piano. Grandma Mabel was a famous piano teacher and I always loved going to her home to play on her baby grand. The record was recorded two years before my dad's birth. Incredible is an understatement.

It's Thursday, it's raining and I'm tired. 'Night

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3 Years

I had Kate at a park that we've only been to a few times the other day.
Naturally, I had my camera.
I remembered being there with Scott sometime ago and searched out the photos.

It was our anniversary in 2008, almost 3 years ago.

I can't believe how big she's gotten.



Don't worry Baby Girl. Daddy will always be standing at the bottom to catch you. Even if you can't see him.

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The Story of Us

Sometime this morning it came into my mind that I haven't told the story of us. The story of how we met, fell in love and started our life. I thought today, on the anniversary of our first date (nine years ago) I would share my version of the story of us. I regret that I don't have Scott's story documented. I'll try to add in the pieces he would always add in whenever this story was regaled.

And so it begins,

I had just started a new job and was told to "call Scott at Northwest and arrange to get this stuff over here." So that's what I did. Our first phone call wasn't just the brief, in passing, type. I introduce myself, inquired about how his day was and instead of the usual "Fine. Thanks." I got a real answer. I wish I could remember the answer but I cannot. I do remember that when he inquired about my day I knew he meant it. He really wanted to know. He wasn't just being polite like I had just been. And so it begun.
For weeks, there were reasons to call "Scott at Northwest". Sometimes I made them up, other times I was actually doing my job. Every time we talked I learned something new. Not a girl to let things happen slowly, I made it very clear that I was single, dating and really hating most of the guys I had met recently. I hinted, pushed, nudged, and stopped just short of skywriting "Ask me out Dumbass."
This is the part of the story where Scott would interject and say "I didn't want to be pushy. You seemed so nice."
Then finally, one day, Scott had reason to come to my office. I was ready. Killer dress, fab heels, hair and make-up done, not the typical attire for a construction office. The moment I saw him through the glass door I knew it. I knew I needed him. He was exactly what I had pictured. What I had imagined. Exactly what I wanted and needed.
Sadly, he came in, greeted me with a polite handshake, dropped off the few items and left. He would tell you that he decided I was to pretty for him to ask out but I never bought that. I thought he was just chicken.
We returned to our conversations. Talking longer and longer each time. After a particularly long weekend where I became so frustrated by the choices in front of me, I laid it on the line. My line was something cheesy like "I could never find a good guy like you to go out with." That was it, he finally got the hint and asked me out.
I couldn't wait! He suggested waiting two weeks, you know that wasn't going to fly and so I suggested two days later. I always did get my way. I finally had it, my date with "Scott from Northwest". Dragging Sere to the mall, we scoured every store (a few of them twice) to find the perfect outfit.
Date night finally arrived. Scott arrived promptly, met my parents and stood waiting for me at the top of the stairs when I finally gathered myself together enough to emerge from my residence in the parents' basement. He and my dad were laughing about something, I have no idea what, but in that moment, I looked at him and knew. That was it. I was done.
Jumping in his truck, we were off to Port Barrington. We closed the doors to the truck and it began. The incessant talking. For the next eight hours we didn't shut up. We talked tv, we talked, family, we talked sports, politics, money, children. We talked about everything and nothing.
We talked so much that the waitress, as the kitchen was getting ready to close at 10 (we got there at 630), finally asked if we wanted her to order for us. Hastily we both chose a dish. I don't remember what we ate, though I know Scott didn't have pasta because as I would find out a short time later, the poor boy had no idea how to properly eat spaghetti and he didn't want to embarrass himself.
We talked as we walked out the door hours later, both forgetting about the bar bill. I didn't know this either until sometime later. Scott felt so awful, he went back the next day and took care of the bill and left a huge tip. Always, the good guy.
Driving back to my parents, we talked. Yup, more talking. We sat outside my parents house and talked until the wee hours of the morning. He told me about losing his mom and his sister. He assured me the doctors said he didn't have VEDS. It didn't matter. Already, it didn't matter.

I got out of the car that night without a kiss. I reached across the truck and scored a hug but Scott, the gentleman didn't even attempt a first date kiss.
I went to bed that night thinking that the man of my dreams thought of me like a kid sister. Turns out Scott went to bed that night thinking "Did I really just meet my future wife?".
The post date phone call late Sunday afternoon went something like Him-"We should do that again some time." Me - "That would be awesome." Him - "How's next weekend?" Me - "I don't really want to wait that long how about Tuesday?" Him - "That would be great."

The second date Cubs game. I've shared the hot dog story from the game. But what you don't know is that we joked on the way down to the game, sitting in bumper to bumper Chicago traffic just outside O'Hare airport, I said "Screw the game let's fly to Vegas." Scott's response "And get married."
There was a pause in the truck. As we both thought about if we could actually just fly off and get married. No thoughts of "I just met this person I shouldn't do that." Just thoughts of "People would really think I was crazy." In the end it was the disappointment that my mom would feel in not seeing her only daughter get married that kept up from jumping on the next flight out of town.
That second date finally ended with a kiss. He asked for permission first.
And off we went. We were inseparable. Spending all our time together. Going on adventures. Enjoying life.

Christmas Eve of that year, we got our first major punch. Scott called from the Emergency Room. He was in incredible pain and wasn't going to make it to Christmas eve dinner. Dropping everything I rushed to be with him. It was in that room that we first heard "we think you have Vascular Ehlers-Danlos." We had only been dating 3months. Scott had a right leg aneurysm and the level 2 trauma center needed to move him immediately to a level 1. Christmas Eve night was spent flying down the road in an ambulance. Snow, apprehension, worry, flying around us.
Christmas morning, my mom took one look at me and said "Go to him." Nothing else mattered. I didn't care about stockings, presents, dinner. I just wanted my Scott.

Scott told me before his first angio, right after the doctor told us he would be lucky to be alive at the end of the day, Scott looked me right in the eyes and said "you can go." I didn't. I wouldn't. I couldn't. I never regretted it. Not even for a minute.

From that first storm to the last moment, we were together. We will always be together.




Photo compliments of Kara Schultz.

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When did this happen?

My sweet baby girl is growing up. I don't know when it happened but when I looked at these pictures that I took the day we went to Daddy Lake, and couldn't believe my eyes.

I told Kate that she was getting to big and I pushed down on the top of her head (just like my dad did to me) and told her to stop growing. Tonight as we played Berenstein Bears Learn to Share (a board game) she sat sitting on the floor pushing down on her head.

"I don't want to grow up mom. Daddy won't know what I look like if I get big."

I assured her that such a thing is completely impossible. Her daddy would know her anywhere. Not even heaven can keep her daddy away.

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